We're two thirds of the way through conference season and it's fair to say the spoonie warriors are suffering badly from exhaustion. It all started with the Liberal Democrats in Birmingham, with stunning performances from speakers like Shana Pezaro, culminating in the Liberal Democrats passing a motion to challenge some of the most destructive parts of the Welfare Reform Bill, meaning that it is now official Liberal Democrat policy to oppose some of the government's plans. 

 I managed to attend the Disability Benefits Consortium event at the Liveral Democrat conference even though The Broken of Britain can't even afford stamps or cards because I happened to have a place to stay in Birmingham and a boyfriend good enough to push me to and from the event despite his personal discomfort at being so close to politicians. The Lib Dem DBC event was outside the secure zone so I could attend without a pass, but although the actual venue was very accessible, getting there was a problem. The hotel had been advised to expect disabled people, and parking in their car park made available to us...but it was impossible to drive to the hotel car park because the roads surrounding it were within the secure zone. If my boyfriend hadn't been prepared to give up his time to push me half a mile to and from the event it would not have been possible to get me there. Fortunately he stepped up and the event was well worth attending. 


Big credit to Steve Winyard from the RNIB who stood up at the end of the DBC event and called upon all the charities to focus on aggressive campaigning against the damaging parts of the Welfare Reform Bill as an immediate priority. Grassroots campaigners are now eagerly awaiting the rest of the big charities to follow RNIB's stance and remember their most important duty is to support those of us they purport to represent. 


Labour's conference was held in Liverpool which made it easier for our penniless campaigners to attend as I live close enough to drive to Liverpool and to provide the fabulous Sue Marsh with accomodation as she was there in her dual roles as campaigner for The Broken of Britain and as delegate for her local Labour party. 


Liverpool's a great city and Scousers are warm, welcoming people so we all owe our thanks to the nice car park man who I blagged free, all day parking from by explaining we were disability rights campaigners- it was supposed to be £12 a day which is far too expensive for us!

Sue had a conference pass in her Labour role, but as I am not a member of any political party it proved impossible for us to find, or afford a conference pass for me, even though Lord Prescott helpfully tweeted asking Labour to provide me with a pass. That meant I had to stay outside the secure zone until Wednesday's open day for non Labour members for which I had a pass. 


Still, we networked and campaigned as best we could. Short of both spoons and equipment Sue and I spent our time at conference sharing a mobility scooter - which unsurprisingly attracted an awful lot of attention. Thanks to Merseyside Police for smiling and waving at us rather than arresting us for inappropriate mobility scooting behaviour! 


Unfortunately, the event organised by Disability Benefits Consortium on the welfare reform bill had to be moved at the last minute inside the secure zone, meaning I couldn't attend and no-one from The Broken of Britain was able to be there to put your concerns across. It had been booked in the Albert Dock's Premier Inn - who insist they told conference organisers it wasn't fully accessible, but conference claimed of course that Premier Inn had told them it was fully accessible. None of this will surprise sick or disabled people but it did seem to come as a surprise to others. Having made up a bed to sleep in the back of my car so that I could manage to be at the event after a morning networking this was very frustrating news. 

Despite the lack of access and disappointments about welfare being whitewashed from the Conference we picked ourselves up and carried on. Monday finished me off completely and I spent Tuesday at home in a haze of pain, exhaustion and heavy medication while Sue bravely went back into battle on all our behalfs. In public Sue and I manage to hold it together and appear eloquent and in control, but my boyfriend and her husband get the uncensored version where we can't even string two words together because we're so exhausted. 


Wednesday morning in my flat was a scene to behold as Sue and I attempted to transform ourselves from pale, dark eyed, exhausted women into some sort of glamourous, publicly presentable version. Somehow we pulled it off and made it into the secure zone once again sharing the BendyBus. Fortunately there don't appear to be any photos either of Sue and I on the scooter together, or of Giles from the Daily Politics show scooting through conference with me sat on his knee! 


We met up with Dame Anne Begg for a drink to discuss welfare issues, hung out with bloggers and then went off for the main attraction of the day, the Labour open day question and answer session with Ed Miliband. 


Poor Ed. As my parent's commented, he just didn't know what he was taking on and the question Sue and I had so carefully crafted handbagged him good and proper. Being a spoonie I had to leave the Q&A session to go for a wee immediately after Ed Miliband responded to our question and poor Sue was left in the hall not knowing what had happened to me! I was followed to the toilet by camera crews from the BBC and ITN so it was a while before Sue found me and she was so worried I'd been kidnapped by the Labour party ;) 


Although Sue and I were both shaking with exhaustion at this point we couldn't hang around because I was booked to speak at Left Foot Forward's fringe event held in Baby Blue Bar....which turned out to be accessible only by a flight of concrete steps. Huge thanks go to Will Straw for his knight in shining armour role who carried me into the venue and the twitter follower who introduced himself to me and carried me back out of the venue** Sue and I both got back on to the BendyBus and arrived in style at the Labour tweet up...we were so exhausted we couldn't stay long but it was great to meet everyone and be written on by The Farm even if two days later I've still got black pen on my arm! 


So...that's two conferences attended, blagged, networked by The Broken of Britain and all without a penny of funding. Ed Miliband has been in touch to say he intends to honour his promise to meet with us and discuss sickness and/or disability issues in relation to welfare which we are all very much looking forward to. 


Next week conference season finishes with the Conservative conference in Manchester. We don't have a conference pass, and don't anticipate being able to find one at such short notice, but we'd love to meet Iain Duncan Smith, Maria Miller or David Cameron there if they are willing to match Ed Miliband's promise to meet with sick/disabled people actually affected by their 'reforms'! Assuming the Disability Benefits Consortium welfare event remains outside the secure zone I'll be attending that at Conservative Party Conference and we'll keep you updated as to any developments. 


But for now, your two exhausted spoonie warriors just want to get through the rest of today and spend a wekend resting up, enjoying the weather and a complete holiday from welfare. 






*we're working on transcripts for people with hearing impairments and United Response are trying to put together an easy read version so please give us some time to get those out

Template Letter To The Lords Re Welfare Reform Bill

So, with the welfare reform bill about to have it's second reading in the Lords, I've written this template letter to send and DarkestAngel32 blog have produced this brilliant list of email addresses to send it to.

Obviously feel free to send your own letter about the things that matter most to you, but if you'd like to send mine, you're very welcome. Email addresses are at the end and whether you send the letter to one peer or everyone on the list, it all makes a difference.

Please do join in. The more letters and emails they receive, the more chance we have of making a difference. The bill is already facing difficulties because of the brilliant work we did while it was in the commons. Now we need to build on that and make sure that as many peers as possible know about the issues.

Finally, please share this article, tweet, link and send to friends. Thanks.


Dear ..........[insert name of peer]

On the 13th September, the welfare reform bill will have it'second reading in the House of Lords.

Rather unusually, many aspects of the bill are yet to be finalised or fully detailed. This in itself, will, I'm sure, make your job rather difficult as you consider the many, many details and changes proposed.

However, I'm writing to you with some very specific concerns that sick and disabled people have and I've linked to some articles and research which I hope you will find helpful.

1) Removing Disability Living Allowance mobility payments from adults in residential care.
An adult who needs to live in residential care will have extensive needs and are often amongst the most severely disabled. The mobility component of DLA afforded them their only freedom, allowing them to choose to fund a power wheelchair otherwise unavailable on the NHS, or to pay for taxis or transport to get out now and then. Taking this away would leave the most vulnerable disabled people effectively housebound. There is no support for this change anywhere - charities, independent benefit reports and even the government's own advisers have called for this to be removed from the bill.

2) Scrapping DLA entirely and replacing it with Personal Independent Payments (PIPs).
DLA is a very effective benefit with fraud rates of less than 1% (DWP own figures) It is already incredibly hard to claim and the qualification criteria are very narrow. The government have announced that DLA claimants will also soon face assessment and that the overall number of claimants will be reduced by at least 20%. The government's own advisory committee concluded that they could find no justification for this reform and have asked for clarification from the government.
If a benefit is already very efficient, yet a government announce a 20% cull before a single assessment has even taken place, we conclude it can only be a cost cutting measure that will ignore genuine need.

3) Time limiting Employment Support Allowance (ESA, previously Incapacity Benefit) to 1 Year
Many people who need to claim ESA have "long term variable" or chronic illnesses such as MS, Parkinson's, Bowel Disease, Leukaemia or severe Mental Illness. These conditions often do not go away after a year and sadly, often get worse over time. A high percentage of those with these conditions are being found "fit for work" under ESA but after 1 year, if they have a working partner, they will receive no state assistance whatsoever. All of their benefit will be stopped, a loss of just under £5000 a year.


4) ATOS assessments are "unfit for purpose" and a better way of assessing need must be implemented.

ATOS are the private company charged with assessing over 1.5 million sick and disabled people during this parliament.

-Up to 40% of rejected claims are going to appeal with up to 70% of those decisions being overturned with representation.
-Assessments are humiliating and degrading causing great anxiety to those genuinely in need.
-Just 7% of previous claimants are being found unfit to work on a long term basis.
-Testimony from Consultants and GPs is often ignored entirely.
-People are dying before lengthy appeals can be heard.
-Even the professor who designed these assessments calls them a "complete mess"

There are other problems with the bill - capping housing benefit; re-classifying "mobility" so that those who use their wheelchairs too efficiently can be classed as "fully mobile"; removing an age related payment from ESA; scrapping the Independent Living Fund; cutting community care provision; cutting the Access to Work programme and many more - all of which will hurt sick and disabled people disproportionately, but the four points above MUST be addressed before the Welfare Reform Bill is passed.

They are causing or will cause real hardship.
They will not achieve savings as pressures will only be shifted to the NHS or social care provision.
They will increase homelessness, mental illness and poverty amongst this most vulnerable group of all
They will leave many in genuine need without support
They reduce the independence, standard of life and dignity of those we have a basic duty to protect.

I urge you to give these issues your time and consideration. Please, help us to make sure that amendments to the bill are passed ensuring that these 4 issues are addressed.

Yours faithfully,

...............[add your name]

List of contact details :


Baroness Thomas of Winchester
thomascm@parliament.uk
Baroness Morgan of Drefelin
http://www.theyworkforyou.com/peer/baroness_morgan_of_drefelin
Baroness Sherlock
http://www.theyworkforyou.com/peer/baroness_sherlock
Baroness Stowell of Beeston
stowellt@parliament.uk
Lord Bishop of Hereford
bishop@hereford.anglican.org
Countess of Mar
marm@parliament.uk
Lord Feldman of Elstree
chairman@conservatives.com
Lord Freud
freudd@parliament.uk
Lord German
germanm@parliament.uk
Lord Stoneham of Droxford
http://www.theyworkforyou.com/peer/lord_stoneham_of_droxford
Lord Addington
addingtond@parliament.uk
Lord Adebowale
adebowalev@parliament.uk
Lord Beecham
beechamj@parliament.uk
Lord Boswell of Aynho
boswellte@parliament.uk
Baroness Campbell of Surbiton
campbelljs@parliament.uk
Baroness Donaghy
http://www.theyworkforyou.com/peer/baroness_donaghy
Baroness Drake
http://www.theyworkforyou.com/peer/baroness_drake
Baroness Flather
http://www.theyworkforyou.com/peer/baroness_flather
Baroness Greengross
greengrosss@parliament.uk
Baroness Grey-Thompson
greeythompsont@parliament.uk
Baroness Hayter of Kentish Town
hayterd@parliament.uk
Baroness Healy of Primrose Hill
healyab@parliament.uk
Baroness Hollins
http://www.theyworkforyou.com/peer/baroness_hollins
Baroness Hollis of Heigham
hollisp@parliament.uk
Baroness Howe of Idlicote
howee@parliament.uk
Lord Kennedy of Southwark
kennedyro@parliament.uk
Baroness King of Bow
http://www.theyworkforyou.com/peer/baroness_king_of_bow
Lord Kirkwood of Kirkhope
http://www.theyworkforyou.com/peer/lord_kirkwood_of_kirkhope
Lord Knight of Weymouth
knightja@parliament.uk
Bishop Leicester
http://www.theyworkforyou.com/peer/bishop_of_leicester
Baroness Lister of Burtersett
http://www.theyworkforyou.com/peer/baroness_lister_of_burtersett
Lord Low of Dalston
lowc@parliament.uk
Lord Mackay of Clashfern
mackayjp@parliament.uk
Lord Mckenzie of Luton
mckenziew@parliament.uk
Baroness Meacher
http://www.theyworkforyou.com/peer/baroness_meacher
Lord Morris of Handsworth
morrisw@parliament.uk
Lord Newton of Braintree
http://www.theyworkforyou.com/peer/lord_newton_of_braintree
Lord Patel
http://www.theyworkforyou.com/peer/lord_patel
Lord Ramsbotham
ramsbothamd@parliament.uk
Lord Rix
http://www.theyworkforyou.com/peer/lord_rix
Lord Touhig
touhigjd@parliament.uk
Baroness Turner of Camden
http://www.theyworkforyou.com/peer/baroness_turner_of_camden
Lord Whitty
whittyl@parliament.uk
Lord Wigley
http://www.theyworkforyou.com/peer/lord_wigley
Baroness Wilkins
wilkinsrc@parliament.uk

Today at 5pm - Clear your Diaries.... #AskEdM

Awww, that's nice, Ed Miliband wants to know what we thought of his speech!

He'll be hosting a web-chat 5.00pm today on Twitter! Using the hashtag #AskEdM

Wouldn't it be good if 1000's of people asked him why he chose to use a man on Incapacity Benefit to paint a picture of how society is irresponsible, going on to use this man as an example of "not showing responsibility" "shirking his duties" "abusing the system because he could work but didn't" "ripping off our society" he was not a "good citizen" he was "abusing the trust of his neighbours"......?

Why he supported a scrounger narrative that is already causing a rise in disability hate crime?
What he based his 2 minute Work Capability Assessment on?
Why he won't admit that ESA is a shambles

Remember, Mr Miliband has been consulting the country. Listening to the concerns of those who "work hard and do the right thing" He want's to know what Labour got wrong. He's heard from the Daily Mail loud and clear it seems. Today, we could make sure that he hears from us.

**It's nearly lunchtime now. For enough people to make an impact, we need to send this to every campaigner, supporter, friend and contact we can think of. OK. it won't change the world, but it might cause a stir. Pls RT, link and mail out.

Welfare For The People, By The People - A Consultation

Did you ever wish you hadn't started something?

When I started this blog, I had some hazy idea that perhaps I could share my stories and it might help other sick or disabled people to feel connected. I thought I'd tippety-tap away now and again, saving my poor hubby the trauma of 24/7 news bulletins and political rants.

I didn't for one minute think many people would notice. I'd used the odd forum here and there and imagined a kind of cosy support group where "spoonies" "sickies" and "crips" could enjoy reading the ramblings of someone who actually "got it"

I didn't think I'd find myself reading endless transcripts of a dangerous and callous welfare reform bill. I didn't think I'd be on radio shows or in national newspapers opposing cabinet ministers. I didn't for one second imagine my blog would shoot into the top 50 political blogs and stay there and I certainly didn't think I'd be invited to the Compass conference next month as a guest speaker.

And that's just the stuff I can tell you about!!

You may have noticed fewer posts lately and if you knew the stuff I can't write about (though I will) you'd see why blogging is having to take a bit of a back seat.

I've always liked to learn and OH MY GOD have I been learning. In just over 6 months, I've read just about every theory put forward on welfare reform over the past two decades. I've read Blue Labour, Purple Labour, Policy Exchange, Progress & Compass reports, everything written by Iain Duncan-Smith, James Purnell, Frank Field and Jonathan Rutherford**.

Shall I sum them up for you in a natty soundbite?

"I despair"

Or another?

"Get a bigger stick, throw away the carrots and beat 'em to despair"

I read their "proposals" with incredulous dismay. I wonder just how many have ever actually experienced any of the problems they wish to solve. From the mid nineties, politicians who timidly took the first steps towards reducing the welfare bill have been encouraged to "think the unthinkable" and over the years, they've forgotten that it was ever considered unthinkable in the first place. The "unthinkable" is now not radical enough and, as I write on an almost daily basis, we've reached the tipping point. We are on the brink of removing sickness benefits altogether and disability benefits are to be slashed so far, that sick and disabled people have only the last resort of our judicial system.

We have reached a stage, where only the Human Rights Act or the European Court of Appeal can save us now.

Why? How has it come to this? When asked to "think outside the box", why did every last politician think inside a tiny, claustrophobic box tied up with ignorance-string? How did the "scrounger" narrative get such traction? Why did every last politician consider how to throw us off benefits with little care or concern for where we will go? Why did a succession of Oxbridge educated men choose to focus on a mythical hoard of cheats and skivers, convinced that with bigger and bigger sticks we could be forced into work? If fraud is just 1/2 a percent, what convinces these men that most could and should work? When medical evidence assures them that many of us can't and, in fact, work will make us worse, why do they ignore it?

Now let's see how successful they've been. Since 1994, successive "work programmes" and schemes have been rolled out to get sick or disabled people back into work. Has the welfare bill gone down? Has business embraced us and modified their structures to include us? Have the private companies, paid billions to find us work been successful?

No, No and No.

Not one single thing has changed in 25 years. The sickness and disability benefits bill has stayed stubbornly constant and work programmes have pathetic success rates of between 8 and 15% (almost identical to the number of people who find work on their own)

The solution? Cheat.

Change the descriptors, make certain that fewer people will qualify and break a million eggs to make a rotten omlette. Since Labour started "cheating" in 2008 the rate of those claiming sickness benefits has fallen. Now the Conservatives are about to cheat in such a spectacular way that the financial bill will certainly go down dramatically, but at what cost? Using the model of the past 25 years, this will be considered a "success" as costs will finally be cut. Eureka!! All they needed was one almighty stick and a sneaky bit of legislation or two that effectively all but stops sickness benefits altogether.

One might think that if a government are serious about stopping sickness benefits, they would have their best thinkers devising plans to make sure that the people affected had somewhere to go. That they wouldn't be left to starve without some pretty cast iron guarantees that there would be an alternative. One might think that there would be research available to prove that pulling support would in fact be empowering and manageable, but there is none.

Having said all this, we're no closer to finding out "why?" politicians are convinced that we can all pick up our beds and walk - or are we?

Ladies and gentlemen, I give you the "Psycho-Social Model"

Allow me to paraphrase. (The link above will give you the scientific stuff, I'll just put it in Sue-speak.)

We are all sick or even disabled because we choose to define ourselves as such. Despite our various diagnoses, those that manage to work have a better psychological grip of reality and do not become "victims". We choose to stop working from a lack of confidence or fear of failure and become lazy and plagued by doubts. The longer this fear develops, the less likely we are to find work and stay in it.

Any symptom, and disability can be overcome through perseverance and the right mental stance - we simply need re-training in our attitudes. Hence the conclusion we reach today, where you ask what work you can do, not how your illness or disability limits you. Those unwilling (remember none are unable) to find work they can do will be abandoned.

Time Limiting ESA will enshrine this in law. If you haven't overcome these "psycho-social" flaws within one year and found work, the state will wash it's hands of you. That's why the language speaks of "helping" us into work. The paternalistic state will stop our metaphorical pocket money and take away our sweets if we are disobedient. If "encouragement" doesn't work, there are a whole host of sticks to beat us with.

This also explains an assessment that focusses solely on what we are physically able to do and ignores any  pain or symptoms or distress. Pain and symptoms and distress can all be overcome according to the psycho-social model, they are simply a part of our psycho-social weakness; shields to keep the world away, to wallow in our own helplessness. If you can swallow or do up a button or pick up a penny, you must, no matter what it costs you, or you are simply allowing neurological impulses to get in the way of a full and financially productive life.

It might not surprise many readers to find that Frank Field and James Purnell are the most zealous advocates of a psycho-social approach to welfare. Reading my red-top precis, academics may nod sagely, believing there is much to recommend the theory. And that is the vast, putrid, hideous, terrifying problem.

If you don't have MS or bowel disease or cancer or schizophrenia or alcoholism or parkinson's or lupus; if your research is conducted in an academic bubble of theories and sociological studies and think-tank jargon, you might as well be designing policy for fish. However much an affluent, out-of-touch politician might think a theory is the answer to all their prayers, you simply cannot make an unsound theory fit reality without cheating.  An alpha-male, who has sailed through life without physical trauma, poverty or disadvantage, will simply be totally unable to empathise with the nuances of suffering. They can no more design a welfare system that works than I could design a new offside rule.

Until sick and disabled people start to put forward their own suggestions, their own answers, we will remain in the hands of ignorance and arrogance. Until we are at the heart of policy making, we will suffer policies that may as well have been designed by aliens. The time has come where it is no longer enough to oppose, we must educate and inform. We must save ourselves, because my endless nights spent poring over welfare papers has convinced me that we have no alternative. Privileged academics and politicians have proven themselves horrifically incapable of even beginning to understand our lives and if we are to get a welfare system that actually works for us, we need to start making suggestions. We have the experience, the knowledge and the understanding and they never will.

So today, please use the comment thread below to explain what would help you. Contribute your ideas and suggestions no matter how silly or unformed you think they are. Share your stories of trying to work and how the system has failed or supported you. Make them essays or make them just a few words. I don't care how long or short they are. Tell me what work you could do and what support you would need to do it. Does the state itself trap you? What could business do to enable you? Is there a working model that could suit you? What type of work would you like? Why is it unavailable? Do you want to work? Would it make you better or worse? Would it increase your affluence or plunge you further into poverty? In an ideal world, what would governments be doing to support you?

Remember, this is a brainstorm. Write anything. It can't possibly be more banal, mis-guided or unworkable than the suggestions of successive politicians.

Please help. Join in, engage, show politicians our endless strength, our great value and our hopes and dreams. Help me and I'll do my very, very best to help you.

As I started this article by explaining, I have been given a voice. I have the privilege of a platform. It's your platform too and I need you to share it. Otherwise, I might just end up as another mis-guided fool who thinks she knows it all. I can speak for myself, but I can't speak for you.


*Finally, please share this article with anyone you know who suffers from a chronic illness or disability. Urge them to contribute to the consultation, tweet it on twitter, share on Facebook and email to friends. Any consultation is only as good as the people who take part. It needs variety and balance. Thanks. 


**Rutherford is the one beacon of hope. He exposed the psycho-social model and opposed incompetent welfare reform before most of us knew it existed. Read more here 

Posted by Sue Marsh at 09:07

BBC Radio London

Sue Marsh on BBC Radio London this morning talking about the issues raised in today's Daily Mail and Daily Express articles for The Broken of Britain. Sue's section starts about 37 minutes in.

A Note To Disability Sceptics

It might sometimes seem as though disability campaigners are asking you to take an awful lot on trust.

We tell you that we are not opposed to all welfare reform, yet only write about the parts we disagree with. We point out that genuine support to find rewarding employment would be welcomed, but ask you to believe us when we say that it is the system put in place that fails us - and you.

You watch TV programmes and read newspaper reports that claim virtually all on sickness benefits are "scroungers" or "skivers", yet we keep pointing out that in fact fraud is the lowest of all social security benefits at just 0.5%. Perhaps we should spend a little more time acknowledging that many people on sickness or disability benefits would like to work and would welcome the chance to try.

If you happen to be aligned to a Conservative viewpoint, it's hard to continually hear that a policy is not only chaotic and mis-informed, but potentially dangerous and cruel. As a Labour leftie, I know all too well how frustrating it is when you have the best of intentions in government, but face a constant wall of opposition. If you believe passionately that work is the best medicine, it's hard to hear that for some, that just isn't the case.

Nonetheless, when something is wrong, it's wrong.

Employment Support Allowance (ESA, the replacement for Incapacity Benefit) was wrong when Labour introduced it and it's just as wrong today. It was based on flawed assumptions and spurious research. In 13 years, it was the first thing I openly opposed my own party over. It was clear that it would cause great suffering and injustice and I simply could not let it go unchecked.

Worst of all it might just sound like self interest : "Don't cut our benefits, don't make us pay."

Some ask how I  (and my campaigning colleagues at The Broken of Britain ) manage to write so passionately or find time to research our work, yet don't take a "real" job. Well this is why.

We are making ourselves (more) ill. We are pushing ourselves too far. Daily, we take on too much and fight too hard.  Yet at some point a kind of fatalistic "nothing left to lose" attitude crept over us. We don't have wealthy supporters or powerful voices to fight our cause. If someone wants an "expert" for a radio show or newspaper column, it has to be us. There is no-one else. If someone wants an article within the hour on a particularly pernicious benefit story, we have to write it. There is no-one else.

But we're doing it for you too.

Sickness or disability can happen to anyone at any time. You might think that you would cope, work on through, but we who have been there know that sometimes there comes a time when you simply can't. We know that life can change in a heartbeat. That cancer or car accidents, disease or despair can strike anyone at any time - from the CEO who has a breakdown that he thought could never happen to him to the student diagnosed with leukaemia.

We know that skis can come lose or motorbikes can spin into ditches, crushing our hopes for the future as surely as our limbs. We know that defective genes or delinquent organs can lurk as surely in a lawyer as a clerk.

And we know, through terrible experience that when, God forbid, the lottery of life comes calling, you have a right to dignity. Not wealth or special favours, just a little basic provision and a knowledge that we live in a society that won't let you fall.

So, we have to fight. We have to be controversial. We have to grab your attention. We have to find ways to have our voices heard by a media and political class who largely don't want to know. But I just wanted you to know that we're fighting for you too.

Originally posted here 

Last Day For Submissions To ESA Enquiry

Today is the last day for submitting your evidence/experiences to the ESA enquiry.


-If you have experience of an ATOS Work Capability Assessment
-If you are currently on IB but will soon be assessed for ESA
-If you have experience of the Work Capability Group
-If you are concerned about Time Limiting or any other aspect of the changes, then


Please take a few moments to read the issues outlined in the enquiry below and if you feel one or more have affected you, I urge you to write a short statement. It might be a description of how unsuitable your assessment was, your experiences of ATOS, or how time limiting the benefit could affect your partner's ability to keep working. If you have been through the worry and fear of a tribunal, we need to explain how this fails too, or how hard it is to always be fighting.

Obviously, you can respond to all of the points if you feel you have personal experience to share. Contact details for sending in submissions can be found by clicking on "How to submit Written Evidence" at the bottom of the DWP quote.

However, I have set up a new email address, suey2yblog@hotmail.co.uk to enable anyone who wishes to, to write their feelings and thoughts and contributions without having to make their personal details available on my blog. It is vital that each submission is accompanied by a name address and telephone number to ensure that as many submissions can be made as possible.

You don't need to be a writer or a campaigner - far from it. It doesn't matter what you write or how. No submissions will be censored or altered. I will simply collect them together until the submission date. If you've never been actively involved before, I urge you to think about joining in. This is the best chance we, the public, have to be heard and hopefully, to change the most damaging aspects of ESA.

"Employment and Support Allowance (ESA) replaced incapacity benefits for people making new claims from October 2008. To be eligible for ESA, a person must usually undergo a Work Capability Assessment (WCA).

The introduction of ESA in 2008 was initially limited to new claimants. Existing incapacity benefit claimants are now being reassessed under the Work Capability Assessment. The process will last until 2014 with around 1.5 million people being reassessed.

Reassessment commenced on 11 October 2010 with a trial in Aberdeen and Burnley.  At the end of February, Jobcentre Plus began a limited introductory phase, and will move to full national reassessment of incapacity benefit claimants from April 2011.

In particular, the Inquiry will focus on the following issues:

• The Department’s communications to customers going through the assessment and whether the information, guidance and advice provided by the Department and Jobcentre Plus is effective in supporting customers through the process.
• The Work Capability Assessment including: the assessment criteria; the service provided by Atos staff; the suitability of assessment centres; and customers’ overall experience of the process.
• The decision-making process and how it could be improved to ensure that customers are confident that the outcome of their assessment is a fair and transparent reflection of their capacity for work. 
• The appeals process, including the time taken for the appeals process to be completed; and whether customers who decide to appeal the outcome of their assessment have all the necessary guidance, information and advice to support them through the process.
• The outcome of the migration process and the different paths taken by the various client groups: those moved to Jobseeker’s Allowance, including the support provided to find work and theimpact of the labour market on employment prospects; those found fit for work who may be entitled to no further benefits; those placed in the Work Related Activity Group of the ESA, including the likely impact of the Department’s decision to time-limit contribution-based ESA to a year; and those placed in the Support Group.
• The time-scale for the national roll-out for the migration process, including the Department’s capacity to introduce changes identified as necessary in the Aberdeen and Burnley trials.

Short submissions (no more than 3,000 words) are invited from interested organisations and individuals.

The deadline for submissions is 14 April 2011."

How to submit written evidence

That last line is the link that gives details on how the submission should be presented. (just click on it) If you can follow the suggestions, please do, but if they daunt you, don't be put off, just send your story with name, address and telephone number to suey2yblog@hotmail.co.uk and I will attempt to put as many as I can in the format the inquiry requests. (always asking for your approval before submission.)

Most of all though, know that this is great news. It is an enormous achievement that this blog and hundreds of other blogs and campaign groups and charities have highlighted the faults of ESA so effectively that we now have a chance to make our views heard officially.

Please pass this on to anyone you know who might want to participate, and again, share as widely as possible to make sure that as many people are included in this process as possible. 


Once again, the email for submitting via this blog is suey2yblog@hotmail.co.uk

National Day Of Protest

Today is a big day for the sick and disabled.

It is the second National Day of Protest against the cuts sick and disabled people now face.

The emphasis is on ATOS Origin, the company responsible for the astonishingly unsuitable medical testing of disability and sickness benefits. At their headquarters in London, Triton Square, and at offices in Edinburgh, Leeds, Tyneside and Burnley, sick, disabled and able-bodied protesters will raise awareness about exactly why the system was not fit for purpose before the Conservative-led coalition ever came to power and simply cannot take any more strain. ATOS uses "medical professionals" to assess whether someone is sick enough or disabled enough to receive state support, but they aren't doctors or nurses. They are paid on results, incentivised to find us miraculously fit for work. The assessments are demeaning and frightening too, and sick and disabled people find them so distressing that some are even forced to consider taking their own lives.

Perhaps David Cameron and George Osborne will be more concerned about the protests planned in Gloucestershire or Hastings or Islington. When Sussex and the Shires stand with Glasgow and Birmingham, the public start to realise that something must really be wrong. Hastings plan to lay a trail of red drops, all the way to London and the breadth of the protests show that this isn't a minority problem - it's affecting millions of people from all backgrounds, all colours and all creeds in every town and village of the UK.

As with One Month Before Heartbreak The internet will be awash with bloggers and linkers and tweeters and Facebookers telling the world their messages, so do please join in even if you just send this article to three friends - you will be making an enormous difference to how these cuts are perceived and getting the protests in front of a wider audience.

If you need a little inspiration, then please watch this on YouTube :

 http://www.youtube.com/watch?v=lKx3MUqzCcQ "Danny's Speech, Brassed Off, 1996"

If you watch nothing else today, then click on the link above - just a moment away from the kitten that can count or the bloke who can put his legs up his nose. You see, we've been here before. We don't have the luxury of saying, "Oh well, they'll be fine, they'll get through, we all just need to tighten our belts" because sick and disabled people often can't get through. They can't get out to protest and they wouldn't have the energy even if they did. If the miners were broken men in the 80s, then imagine how those who can't physically fight will be affected as they are targeted in the same way in 2011?

For those who can get to a protest today, thank you. For every person there today, there are 10, 50, maybe a thousand people at home, willing you on and manning the keyboards. If the recently departed Pete Postlethwaite from the tremendous clip above is watching, then I think he would be willing you on too.


**If you want to read testimonials from the sick and disabled and learn more about why ATOS and politicians are making a dreadful mistake over ESA and DLA, please do take a few minutes to read some of their powerful stories by clicking on the One Month Before Heartbreak link.

By Sue Marsh