Last night, the House of Lords failed to support an amendment put down by Tanni Grey-Thompson, the most successful paralympian of all time, to protect the benefits of disabled children once Universal Credit is introduced.
You can read more here http://www.family-action.org.uk/section.aspx?id=14225 but effectively, under universal credit, all but the most profoundly disabled children will only get half as much support. Child Tax Credit additions for disabled children will fall from £52.21 per week to £25.95 per week - a loss of £1366 per year, or £20,000 over the course of a childhood.
You might wonder what possible argument a government who promised to "protect the most vulnerable" could possibly make for this change. I myself was fascinated to see how on earth they had justified throwing disabled children to the wolves.
Ready? OK, if they didn't betray disabled children, it would just have to be disabled adults. After all, disabled children have parents to look after them. What's more, if they didn't cut money used to buy wheelchairs and incontinence pads for disabled children, they wouldn't be able to afford to address the hideous failures of ESA (Employment and Support Allowance or sickness benefit) and ensure that all those who qualify for long term support, get it.
Could there be a more disgusting example of divide and conquer? Each man for himself. The image of a Victorian gent throwing a handful of pennies on the floor and leaving the cripples to fight it out amongst themselves comes to mind.
And remember, this is no longer theory.
I've been writing about these issues for 18 months now, sadly my blogs have often contained doom and gloom predictions of horrors to come. Well last night they started to come in a first blaze of in-glory. The Welfare Reform Bill is now at Report Stage in the Lords. These votes will almost certainly decide what becomes law and what doesn't. For disabled children, now it's too late.
Shame on us.
There is one more session before Xmas. Then 4 sessions after Xmas, then the final no-going-back vote to pass the bill. There is still time to lobby peers. There is still time to stop the time limiting of ESA. http://diaryofabenefitscrounger.blogspot.com/2011/12/time-limiting-esa-template-letter-to.html There is still time to oppose PiP and abolishing Disability Allowance. http://onemonthbeforeheartbreak.blogspot.com/ There is still time to fight Clause 52 http://www.guardian.co.uk/commentisfree/2011/dec/08/conservative-compassion-disabled-sick and housing benefit changes that will leave thousands of sick and disabled people at risk of homelessness.
In a week where the government suggested all cancer patients undergoing chemotherapy ought to be assessed to see if they can work or not, I can only wonder where this will all lead. I can only hope history is no guide the future
If I can find any tiny silver lining, it is that we only lost by 2 votes. That is the closest vote I have seen so far.
2 votes. 2 Lords. 2 letters, 2 emails, 2 tweets.
There is still all to play for, but sadly disabled children just fought the last stage of their fight. And lost.

Non-partisan UK-based Disability campaign. Advocacy for people with invisible illness and/or physical & mental health conditions. Also Carers, their Families and Friends. Our individual voices are too quiet to be heard, but collectively we can shout loud enough to drown out this tide of abuse against us. Disability Hate Crime, lack of full legal protection, people in care homes costing too much to be let out and not one political party willing to fight for us.
Tuesday, 13 December 2011
Saturday, 10 December 2011
Time Limiting ESA - Template Letter to Lords
Yesterday, I asked you all to write to a Lib Dem peer and plead with them to vote against time limiting ESA to just one year.
Today, I've written a template letter for you to use. Template letters are certainly less effective - many parliamentarians won't open more than one or two of them. However, they are better than not writing at all. For every peer who receives 5, 10, 50 template letters, at least they get to see the strength of feeling people have over an issue.
If you don't have the confidence to write your own, please use this one. Peers might also remember that I write for disabled people. Many cannot write a letter themselves. Due to physical or mental disabilities, I have often had comments from those so very grateful that a template letter I have provided allowed them to engage democratically.
*************
"Dear .........................
I am writing to you in the hope that you will vote against time limiting ESA to just one year in the coming welfare reform bill Report Stage and Third Reading.
-700,000 people with serious illnesses and impairments will be affected by this policy, many losing any right to an independent income. http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-The means test is set at just £7,500 per year, meaning that a partner must support an unwell or disabled loved one if they earn more than this.
-Families already overwhelmingly living in poverty will lose £4661 per year. This is three times as much as higher rate taxpayers will lose in child benefit.
-This policy only affects working families and savers as it only applies to those who have contributed NI or have savings over £6000.
-It is a disincentive to work and will only encourage families to break down http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-The only justification ministers have given for this policy is that "We can't afford it" Sick and disabled people with limited capability for work are conflated with jobseekers as ministers claim ESA must be brought into line with JSA
-Ministers admit that 94% of those affected will not have found work by the end of the year. They also insist that it is irrelevant whether or not they have recovered. http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-People with serious, lifelong, and degenerative conditions will all be affected by this. People with MS, Cancer, Parkinsons, Bowel Disease, Kidney Failure, Heart Disease, Lung Disease, Schizophrenia, Bi-Polar and many many more conditions will lose benefits, left in limbo until they are judged unable to do any kind of work at all,. http://www.publications.parliament.uk/pa/cm201012/cmselect/cmworpen/1015/1015vw44.htm
At your annual conference this year, Liberal Democrat members voted overwhelmingly to oppose an "arbitrary time limit" on ESA. http://carons-musings.blogspot.com/2011/09/please-support-glasgow-norths-brilliant.html Please, please, stand by the wishes of your grassroots and of your party and oppose this cruellest of measures.
We are relying on you to help us. Only Liberal Democrat peers can provide a majority and ensure that a one year time limit on sickness benefits is not made law. Please, you promised to protect the most vulnerable and if ever a policy hit the most vulnerable the hardest, then it is time limiting ESA.
Many thanks
........................
************
Here is a link to Lib Dem Peers. Simply click on it, pick a letter of the alphabet at random, and copy and paste in the letter. http://www.libdems.org.uk/peers.aspx
The more you can do, the more we can persuade. Thank you.
Finally, please keep up the pressure and RT, share on Facbook, email to friends and feel free to cross post this.
Today, I've written a template letter for you to use. Template letters are certainly less effective - many parliamentarians won't open more than one or two of them. However, they are better than not writing at all. For every peer who receives 5, 10, 50 template letters, at least they get to see the strength of feeling people have over an issue.
If you don't have the confidence to write your own, please use this one. Peers might also remember that I write for disabled people. Many cannot write a letter themselves. Due to physical or mental disabilities, I have often had comments from those so very grateful that a template letter I have provided allowed them to engage democratically.
*************
"Dear .........................
I am writing to you in the hope that you will vote against time limiting ESA to just one year in the coming welfare reform bill Report Stage and Third Reading.
-700,000 people with serious illnesses and impairments will be affected by this policy, many losing any right to an independent income. http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-The means test is set at just £7,500 per year, meaning that a partner must support an unwell or disabled loved one if they earn more than this.
-Families already overwhelmingly living in poverty will lose £4661 per year. This is three times as much as higher rate taxpayers will lose in child benefit.
-This policy only affects working families and savers as it only applies to those who have contributed NI or have savings over £6000.
-It is a disincentive to work and will only encourage families to break down http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-The only justification ministers have given for this policy is that "We can't afford it" Sick and disabled people with limited capability for work are conflated with jobseekers as ministers claim ESA must be brought into line with JSA
-Ministers admit that 94% of those affected will not have found work by the end of the year. They also insist that it is irrelevant whether or not they have recovered. http://www.dwp.gov.uk/docs/esa-time-limit-wr2011-ia.pdf
-People with serious, lifelong, and degenerative conditions will all be affected by this. People with MS, Cancer, Parkinsons, Bowel Disease, Kidney Failure, Heart Disease, Lung Disease, Schizophrenia, Bi-Polar and many many more conditions will lose benefits, left in limbo until they are judged unable to do any kind of work at all,. http://www.publications.parliament.uk/pa/cm201012/cmselect/cmworpen/1015/1015vw44.htm
At your annual conference this year, Liberal Democrat members voted overwhelmingly to oppose an "arbitrary time limit" on ESA. http://carons-musings.blogspot.com/2011/09/please-support-glasgow-norths-brilliant.html Please, please, stand by the wishes of your grassroots and of your party and oppose this cruellest of measures.
We are relying on you to help us. Only Liberal Democrat peers can provide a majority and ensure that a one year time limit on sickness benefits is not made law. Please, you promised to protect the most vulnerable and if ever a policy hit the most vulnerable the hardest, then it is time limiting ESA.
Many thanks
........................
************
Here is a link to Lib Dem Peers. Simply click on it, pick a letter of the alphabet at random, and copy and paste in the letter. http://www.libdems.org.uk/peers.aspx
The more you can do, the more we can persuade. Thank you.
Finally, please keep up the pressure and RT, share on Facbook, email to friends and feel free to cross post this.
Friday, 9 December 2011
Time Limiting ESA - We MUST stop it.
It seems that the Conservatives are simply not willing to give an inch on Time Limiting ESA.
Just to be clear, this means that if you have worked and paid national insurance contributions you will face an assessment. If that assessment finds that you are indeed unwell, but may be able to do some work at some point, you will only qualify for support for a year.
At the end of that year, no matter how ill you remain, if you have a partner who earns just £7,500 or more, or limited savings, you will lose all ESA. All of it.
Those with long term, serious illnesses, mental health conditions and learning disabilities are likely to be the worst affected. Sickness benefits as we know them will become a thing of the past. Just 6% of new claimants will qualify for long term support, the rest will have just one year.
I have written about time limiting extensively here (click for article)
The government accept that 94% will not have found work at the end of that year. They accept that they will not have recovered. They simply say "We can't afford it"
Just to be clear, this means that if you have worked and paid national insurance contributions you will face an assessment. If that assessment finds that you are indeed unwell, but may be able to do some work at some point, you will only qualify for support for a year.
At the end of that year, no matter how ill you remain, if you have a partner who earns just £7,500 or more, or limited savings, you will lose all ESA. All of it.
Those with long term, serious illnesses, mental health conditions and learning disabilities are likely to be the worst affected. Sickness benefits as we know them will become a thing of the past. Just 6% of new claimants will qualify for long term support, the rest will have just one year.
I have written about time limiting extensively here (click for article)
The government accept that 94% will not have found work at the end of that year. They accept that they will not have recovered. They simply say "We can't afford it"
http://www.publications.parliament.uk/pa/cm201012/cmselect/cmworpen/1015/101502.htm
The only way we can now stop the government from going ahead with this most horrifying of policies is for Lib Dem Lords to vote against it.
Earlier this year, Lib Dem grasroots members voted for a motion and amendment at their conference opposing an arbitrary time limit for ESA. The vote was overwhelmingly in favour.
Here is the amendment in full :
After C. (line 25), insert:
D. That vulnerable cases like this, where a welfare recipient’s income is threatened ,should qualify
for free legal representation.
Delete 2 (line 35) and insert:
2. Liberal Democrats in Government to oppose an arbitrary time limit on how long claimants can
claim contributory ESA.
In 3. (line 36), after ‘representation’ insert: ‘and expert advice, and for Government to reconsider
the exclusion of welfare benefits casework such as this from the scope of legal aid.
After 3. (line 36), add:
4. A presumption that ESA claimants with serious and uncontrollable life-threatening conditions
should be allocated to the support group rather than the work related activity group.
5 A review of ATOS performance in delivering the Medical Services Agreement contract with
DWP in respect of the quality of medical assessments.
6. Effective contract compliance for contractors carrying out ESA eligibility assessments to avoid
poor performance, and a presumption that in future ESA eligibility will be carried out by the
public sector or non-profit organisations.
Once this vote was carried, opposing the time limiting of ESA became Liberal Democrat policy.
Today, I'm asking all of you - Liberal Democrat or not - to write to a Lib Dem peer and beg them to oppose the one year time limit. Here is a list of Lib Dem peers http://www.libdems.org.uk/peers.aspx
Simply click on a letter at random, pick one and write to them. Beg them. Explain it to them. Feel free to send them my articles. Remind them about their conference pledge.
They're our only hope. If they support the Conservatives on this, despite the wishes of their members, 700,000 people will be affected. People with Parkinson's, Bowel Disease, MS, Cancer, Heart Failure, Kidney Failure, Lung disease, Schizophrenia, Bi-Polar and any other condition you can think of.
Please, write today. Then write again. Pick another peer and then another and keep writing until after Xmas.
Very early in the New Year, Lords will vote on this issue for the final time. It is only this vote now that stands between time limiting ESA becoming policy.
Please, if you've ever sent one of my letters, every RTd an article because I asked, every written to your MP, every written a blog post or an article, please, do this. Keep doing it until the day of the vote. Tell everyone and ask them to write too.
The welfare reform bill is almost law now. We don't have very many opportunities to make a difference. Let's make a difference over this.
**Feel free to re-post, share, RT and generally make sure that everyone knows, thanks.
The following articles may help:
http://diaryofabenefitscrounger.blogspot.com/2011/03/today-im-launching-my-new-campaign.html
http://diaryofabenefitscrounger.blogspot.com/2011/09/funds-already-in-place-to-go-ahead-with.html
http://diaryofabenefitscrounger.blogspot.com/2011/05/why-labour-still-have-it-wrong-on-esa.html
http://diaryofabenefitscrounger.blogspot.com/2011/03/welfare-reform-that-must-not-go-ahead.html
The only way we can now stop the government from going ahead with this most horrifying of policies is for Lib Dem Lords to vote against it.
Earlier this year, Lib Dem grasroots members voted for a motion and amendment at their conference opposing an arbitrary time limit for ESA. The vote was overwhelmingly in favour.
Here is the amendment in full :
After C. (line 25), insert:
D. That vulnerable cases like this, where a welfare recipient’s income is threatened ,should qualify
for free legal representation.
Delete 2 (line 35) and insert:
2. Liberal Democrats in Government to oppose an arbitrary time limit on how long claimants can
claim contributory ESA.
In 3. (line 36), after ‘representation’ insert: ‘and expert advice, and for Government to reconsider
the exclusion of welfare benefits casework such as this from the scope of legal aid.
After 3. (line 36), add:
4. A presumption that ESA claimants with serious and uncontrollable life-threatening conditions
should be allocated to the support group rather than the work related activity group.
5 A review of ATOS performance in delivering the Medical Services Agreement contract with
DWP in respect of the quality of medical assessments.
6. Effective contract compliance for contractors carrying out ESA eligibility assessments to avoid
poor performance, and a presumption that in future ESA eligibility will be carried out by the
public sector or non-profit organisations.
Once this vote was carried, opposing the time limiting of ESA became Liberal Democrat policy.
Today, I'm asking all of you - Liberal Democrat or not - to write to a Lib Dem peer and beg them to oppose the one year time limit. Here is a list of Lib Dem peers http://www.libdems.org.uk/peers.aspx
Simply click on a letter at random, pick one and write to them. Beg them. Explain it to them. Feel free to send them my articles. Remind them about their conference pledge.
They're our only hope. If they support the Conservatives on this, despite the wishes of their members, 700,000 people will be affected. People with Parkinson's, Bowel Disease, MS, Cancer, Heart Failure, Kidney Failure, Lung disease, Schizophrenia, Bi-Polar and any other condition you can think of.
Please, write today. Then write again. Pick another peer and then another and keep writing until after Xmas.
Very early in the New Year, Lords will vote on this issue for the final time. It is only this vote now that stands between time limiting ESA becoming policy.
Please, if you've ever sent one of my letters, every RTd an article because I asked, every written to your MP, every written a blog post or an article, please, do this. Keep doing it until the day of the vote. Tell everyone and ask them to write too.
The welfare reform bill is almost law now. We don't have very many opportunities to make a difference. Let's make a difference over this.
**Feel free to re-post, share, RT and generally make sure that everyone knows, thanks.
The following articles may help:
http://diaryofabenefitscrounger.blogspot.com/2011/03/today-im-launching-my-new-campaign.html
http://diaryofabenefitscrounger.blogspot.com/2011/09/funds-already-in-place-to-go-ahead-with.html
http://diaryofabenefitscrounger.blogspot.com/2011/05/why-labour-still-have-it-wrong-on-esa.html
http://diaryofabenefitscrounger.blogspot.com/2011/03/welfare-reform-that-must-not-go-ahead.html
Monday, 5 December 2011
A Cripmas Lunch And Spoonie Secret Santa
Christmas can be a difficult time for many people, especially those who are disabled whether that be through a long term sickness, a fluctuating condition, a mental health issue, learning disability or the traditional image of a wheelchair or white stick. For many of us on low incomes buying gifts or travelling to be with loved ones can be impossible, or just practically too exhausting.
Anyone in receipt of benefits will be receiving their annual Christmas bonus soon. Before anyone not in receipt of benefits gets too excited about us 'scrounging types' getting a free, state funded Christmas party this bonus is a one off payment of £10 which has not been increased since it was first introduced. From an initial joke on twitter between @zoesmith, @gentlechaos @Imogen_May @techiebabe and myself the idea of a Cripmas Lunch was born.
We'd like to make sure that for anyone who's alone this Christmas or who needs to spend time with other people in a similar situation that there is an online meeting point where it's easy to gather together to find company, support and hopefully a few laughs. The old BBC Ouch message boards were always busy over Christmas and in recent years other sites disabled people could congregate such as 'yourable' have disappeared leaving a bit of a gap for people to try and find each other. We'll bring you the meeting details as we get more organised but for now there will be a #cripmaslunch tag on twitter so you can search on that and find others. We'll also direct people to particular facebook pages and hopefully a forum venue. People can chat, share music, jokes, find support, whatever they want and we're all looking forward to a fantastic cripmas tale written by @creativecrip
The fantastic Flash Bristow has volunteered to run a Spoonie Secret Santa and all the details are on her blog page here. We're particularly keen for anyone who's isolated to join in, so everyone can receive at least one gift this Christmas and know that someone cares, but it's open to all Spoonies, which means anyone with any kind of sickness, disability, learning disability or mental health problem.
Time is short to participate in the Spoonie Secret Santa because of the last posting dates, but we've set the budget at £5 per gift to try and ensure as many people as possible can afford to take part. Flash needs your details by midnight on Sunday 12th of December so she can assign Secret Santas and people have time to post their gifts.
So, don't be lonely this Christmas - come and join everyone in our Spoonie Secret Santa and Cripmas Lunch!
Anyone in receipt of benefits will be receiving their annual Christmas bonus soon. Before anyone not in receipt of benefits gets too excited about us 'scrounging types' getting a free, state funded Christmas party this bonus is a one off payment of £10 which has not been increased since it was first introduced. From an initial joke on twitter between @zoesmith, @gentlechaos @Imogen_May @techiebabe and myself the idea of a Cripmas Lunch was born.
We'd like to make sure that for anyone who's alone this Christmas or who needs to spend time with other people in a similar situation that there is an online meeting point where it's easy to gather together to find company, support and hopefully a few laughs. The old BBC Ouch message boards were always busy over Christmas and in recent years other sites disabled people could congregate such as 'yourable' have disappeared leaving a bit of a gap for people to try and find each other. We'll bring you the meeting details as we get more organised but for now there will be a #cripmaslunch tag on twitter so you can search on that and find others. We'll also direct people to particular facebook pages and hopefully a forum venue. People can chat, share music, jokes, find support, whatever they want and we're all looking forward to a fantastic cripmas tale written by @creativecrip
The fantastic Flash Bristow has volunteered to run a Spoonie Secret Santa and all the details are on her blog page here. We're particularly keen for anyone who's isolated to join in, so everyone can receive at least one gift this Christmas and know that someone cares, but it's open to all Spoonies, which means anyone with any kind of sickness, disability, learning disability or mental health problem.
Time is short to participate in the Spoonie Secret Santa because of the last posting dates, but we've set the budget at £5 per gift to try and ensure as many people as possible can afford to take part. Flash needs your details by midnight on Sunday 12th of December so she can assign Secret Santas and people have time to post their gifts.
So, don't be lonely this Christmas - come and join everyone in our Spoonie Secret Santa and Cripmas Lunch!
Tuesday, 22 November 2011
Pat Says "Our Voices Will Be Heard"
Since its launch in early November, Pat’s petition has reached out to thousands of disabled people, carers and friends. Magnificent backing has come from all walks of life including charitable organisations, voluntary groups and my own MP!

Far and wide it finds members of the public who care enough and want to help. It is going from strength to strength as more hear about it and want to sign. The offers of support from MIND, Disability Alliance, RNIB, RADAR and so many more, has been truly amazing. Their newsletters will be heard and seen by tens of thousands.
To my small band of ‘warriors’…..disabled or carers themselves, who have all been invaluable friends…….I thank you. You have all made this possible so keep spreading the petition.
Determination to succeed grows ever stronger. Money is, apparently, ‘needed’ elsewhere which the government deems ‘more important.’ The first to get hit, yet again, are those who can least afford it. So where do they get that money from? Of course there is no problem. They move our goal posts ever further apart and steal from those who can least afford it. Sorry – I don’t accept this – I say NO.
I need YOUR help to reach my target of 100,000, so take Pat’s petition and tell everyone.
Please sign and share this link with as many individuals, groups, charities and organisations that you can, and ask them to share it in newsletters.

Far and wide it finds members of the public who care enough and want to help. It is going from strength to strength as more hear about it and want to sign. The offers of support from MIND, Disability Alliance, RNIB, RADAR and so many more, has been truly amazing. Their newsletters will be heard and seen by tens of thousands.
To my small band of ‘warriors’…..disabled or carers themselves, who have all been invaluable friends…….I thank you. You have all made this possible so keep spreading the petition.
Determination to succeed grows ever stronger. Money is, apparently, ‘needed’ elsewhere which the government deems ‘more important.’ The first to get hit, yet again, are those who can least afford it. So where do they get that money from? Of course there is no problem. They move our goal posts ever further apart and steal from those who can least afford it. Sorry – I don’t accept this – I say NO.
I need YOUR help to reach my target of 100,000, so take Pat’s petition and tell everyone.
Together……. ‘I’ becomes ‘we’ and our voices
WILL BE HEARD
Any questions can be sent to
Pat Onions c/o admin@carerwatch.com
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