Tuesday, 8 November 2011

We'll Be Back Soon!

Dear all,

We at The Broken of Britain HQ are having a break for a while.  At the moment, we don't know how long we will be away for, but it will, most probably, be around a month.

Usually, we have someone manning (womanning!) the fort whilst others take a break, but at the moment, we all need some time away.

Various things, be they physical, mental, emotional, or life events, have left us rather frazzled, and we just cannot keep up with everything that we need to to run TBofB properly.

What we write about is so important to so many people, that we would rather not do it, than provide false or erroneous information.

Some of us will still be using Twitter and Facebook, or writing on our blogs, but there is no pressure on us to keep up with the pace on our own our personal accounts, as there is on The Broken of Britain's.

We very much hope you understand, and will still be supporting our cause when we get back.

All very best wishes,

Kali, Rhydian, Lisa, Sue and Melissa xx

Monday, 7 November 2011

Pat's Petition

Pat Onions has submitted an e-petition to the government website. Pat is blind and Pat is also a carer. When we asked her why she submitted this petition she said -
We were determined to attend the Hardest Hit rally in Edinburgh. Determined, in spite of disability, to stand with the others who had made the long and difficult journey. Determined to show we were united as one voice against the vicious cuts we are all enduring. We knew there were many thousands who couldn’t make it. Disability, ill health or cost would prevent them coming. We made it.
To the many there and those who came in spirit……….this petition is for us all.
Pat’s petition reads –

Stop and review the cuts to benefits and services which are falling disproportionately on disabled people, their carers and families.

You can see the full petition on the Government website here 

The Broken of Britain are supporting Pat’s petition.  If Pat gets 100,000 signatures it could generate a debate in Parliament.

There is massive concern over the huge extent of both the welfare reforms and the cuts. Too often when people speak up, their voice is fragmented and discounted. This is an opportunity to get everyone together to speak with one voice, and to register in one place, how many people are asking the government to listen.

Firstly – obviously – we ask you to sign this petition and persuade all your family and friends to do the same. The name of the game is numbers ; so please ask friends, family and any organisations you belong to to sign and get others to sign.

When you sign the petition you will see buttons for twitter and facebook; so please share it with others on Twitter and Facebook.  Let Pat know she has your support by leaving a comment here too.
The first signatures will be the hardest to get, while we get this juggernaut rolling, so please help now and make sure that this petition really takes off.

This petition will only succeed if everyone joins together to support it and TBofB are delighted that  organisations are joining our ranks and offering support.

Organisations on board so far that have agreed to help raise awareness of Pat’s Petition are :

RADAR
Disability Alliance
CarerWatch
The Broken of Britain
CarersUK
DPAC
Benefits and Work

Friday, 4 November 2011

Letter To Maria Miller About Media Misrepresentation

Dear Maria Miller,
In your role as Minister for Disabled People you head the Office for Disability Issues, leading the government in matters that affect disabled people.

I would like to know what you do when:

- Your fellow ministers go on national radio sharing inaccurate information about disability benefits (Ian Duncan Smith recently went on Radio 4’s Today programme and talked about DLA as though it were an out of work benefit, and has spoken about non-means tested benefits as though they were means-tested.)

- National media reports on disability related matters using completely inaccurate statistics.

- National media reports on people claiming disability benefits using inaccurate examples and misleading statistics.
As someone that daily tries to work toward disabled people’s equality – I am disabled myself, I work for an organisation that works with disabled actors and artists, I have disabled family members and friends – I see the effects of public perceptions of disabled people as lead swingers and scroungers, and media misrepresentation encourages this.
As you are in a position to challenge this view on a country-wide scale, as compared to my very local levels of impact, I would expect you to be doing everything in your power to ensure disabled people are not repeatedly misrepresented by my fellow colleagues, or by national media.

I look forward to your response,
Yours sincerely
Robin

With thanks to MillerWatch for sharing this here 

The future of disability rights is in our hands, so what are you going to do about it?


 With thanks to Imogen May the author of this post;

This isn’t going to be a long blog post, winter is setting in and many of The Broken of Britain are struggling as a result. We may be used to dealing with the consequences of the colder climate, but I don’t think any of us were expecting to be shut out in the cold by the Government.

I’ve followed politics since I was in my teens and I’ve always been involved in Grass Roots activism with disability organizations. I’ve felt anxious before, I’ve worPost Optionsried about my friends with fluctuating impairments or mental health impairments, but I’ve genuinely never been terrified.

The truth is, most disabled people honestly don’t realise the true impact of the cuts this Government is planning to make. Currently, information on specific subjects like Housing Benefit or Disability Living Allowance is filtering down through social media sites like Twitter with a handful of people doing their best to bring the stark truth to our attention. But realistically, reaching a few hundred or even a few thousand people online just isn’t going to cut the mustard!

I feel specifically let down by the Disabled Peoples Direct Action Network (DAN), who seem to have been in hiatus for what feels like years. With small demos taking place every few years, it’s about time they lived up to their name! What we need from DAN right now, isn’t just plans for direct actions, but we need that network. We are a community that has constantly had to fight for our rights and that is only going to become more necessary as the coalition slash our entitlement to benefits and make huge cuts to services. We need a network so that disabled people can reach out to one another, actually inform people of what’s to come as well as support them the best we can once this Welfare Reform Bill is passed. 

I was incredibly disappointed that DAN didn’t make use of the recent Hardest Hit marches in October. It would have been the perfect place to not only show they’re still active, but to introduce disabled people who perhaps felt no need to be political previously, into the world of activism. We are in urgent need of absolutely every single angry disabled person to add their voice so that we may actually be heard.

The Government is planning to cut, from 3.5 million disabled people, a total of £9.2 billion by 2015. And that’s just us, the total amount from the Welfare Reform Bill over that same period is something more like £20 billion.
When this bill is finally passed, I want to be able to say that we did everything we possibly could to stop money being taken from the some of the poorest people in our, so-called, Big Society.

The perceived problem with doing something ‘big’ in order to be noticed is the mixed ability within the disability community. Not all of us are able to attend marches or demos, not all of us have the energy to write a blog post and some of us simply don’t have access to the information needed to know where to start. However, I wouldn’t agree that this is a problem at all, in fact I believe that this is the perfect way for us all to take on a role we are capable of managing. We need all the activists, all the bloggers, all the people who can write the most persuasive letters, all the people who can Tweet info right into the smallest corners of the UK and everyone in-between.  I believe that our problem at the moment is that there doesn’t seem to be one group of people attempting to co-ordinate a multi pronged attack. I’m not talking about leaders, or people making decisions without the backing of our community, but people who are willing to spend time contacting people, informing them, giving ideas of where to direct letters or interacting with other grass root organisations to ensure we’re all on the same page.

I know other bloggers and Tweeters who’ve spoken recently about similar things without much response, but we can’t give up! If you want disability rights to be a reality, if you don’t believe the benefit reform threatens your quality of life, if you know your vital care will be slashed, if you’re anyone else who knows that this is vitally important, if you actually want to be part of something powerful and amazing, then you need to be part of this. The ball is in your court now, the future of disability rights is in our hands, so what are you going to do about it?

For more information, e mail Imogen.Jo@Gmail.com & follow Imogen__May on Twitter.

Tuesday, 1 November 2011

#NaNoWriMo 2011 (#disability #spoonie #mentalhealth) - by @CreativeCrip / @IconicImagery #TBofB


"This year I hope to finally set a realistic and achievable #NaNoWriMo goal by focusing on writing blogs for thecreativecrip.com #amwriting". Thus read my first social media status update for 1 November 2011. I am feeling "OK" today and unlike many others in the UK, last weekend's time change seems to have helped me a bit with managing Spoonie fatigue, the pain.and brain fog notwithstanding. After a mad round of tweeting I managed to crawl out of bed and get going.

A well-meaning new-found long-lost relative from across the pond decided to comment on the Facebook entry; "truth is I'm strategic..." she wrote. "...the goal is achievable you have to trust yourself to make it happen."

This was my response:
Not being funny but - as someone who has complex health problems (physical disabilities, illness and mental health) all the planning, strategies and jolly hockey sticks cheerleading in the world cannot guarantee a result. That's just #Spoonie reality - we do what we can, when we can ... unfortunately more often than not it means struggling immensely to do not very much at all... I give myself these pep talks and try strategies every year for #NaNoWriMo but don't really care if I actually manage to submit or even finish... its just helping me to focus on my blog and get some things done that I've neglected.

The thing is, I really would like to achieve a National Novel Writing Month win; I've wanted to for the seven years that I've tried. It's only in the past few years that my increasing problems with concentrating, memory and ability had nothing to do with just being lazy and more than a bit to do with the severe clinical depression that went undiagnosed since I was a teenager battling the Bulimia I still struggle with from time-to-time on the cusp of 46. The added struggles with physical disability and invisible illness makes it even more challenging to get started or keep going even if I do. Even a simple post like this has taken hours, with many stops and restarts.

I am blessed for every day that I have to actually wake up and The Great Spirit willing, I will have many many more. Unfortunately (as I explained to the psychiatrist at my last CMHT check), every night I go to bed my head spinning with a few ideas of things to work on the next day. I make notes in my project books and smartphone when I can manage to not forget within a minute or two of having a scathingly brilliant idea. Then the sun rises and sets again without any of those things getting done. Thus is the vicious circle that constitutes my spoonie not #fitforwork life, day-in and day-out.

Unfortunately it is impossible to have a "normal" schedule. For those who would criticise that sentiment and make a "scrounger" comment; review my LinkedIn profile. Even if I hadn't had my previous career on Wall Street and in The City of London, the life I am forced to lead today still wouldn't be a lifestyle choice. I would gladly give up my need to have help from the State in return for good health and mobility.. I need help - in the form of a Careworker who visits a few times weekly so I don't have to go for months on end without being able to have a shower or shampoo my hair; someone who could take me to the supermarket and help with shopping; someone who would be willing to help me keep my flat tidy and make sure I don't ignore the brown letters of doom from the DWP; someone who would be willing to prepare meals that aren't burnt beyond recognition and make sure that I eat them; someone who could actually be a Lovely Carer (tm @BendyGirl) - which would help me immensely.

I have big dreams and small; and yes, a little fame as a writer and campaigner wouldn't unwelcome. But as Lydia Grant used to say in the opening of the Fame television series: "Fame costs, and right here is where you start paying - in sweat". Like the majority of people in my situation or worse - I'm not afraid of hard work and never have been. The relentless onslaught against disabled people from politicians, government bodies, general public and media takes a toll on my health. This, along with the  lack of Care in my daily life and constant worry about my finances, needing business help and having to move house again etc, makes something as "trivial" as trying for a NaNoWriMo win feel like trying to go up an icy hill alone on rollerblades. I may fail again; but in the words of Bob Hoskins in Maid in Manhattan, what defines us is how well we rise after falling.



Lisa J. Ellwood
Disability & Mental Health Campaigner
The Broken of Britain

Cross-posted from The Creative Crip Blog